Pudendal What?

A visit to my Primary Care Physician in early 2014 was the start to my healing process.  Dr Patrick Roscetti has been my PCP for 10 years.  First with Cigna and now with Honor Health.  He has been with me through this whole ordeal and has been the facilitator in much of my healing.  He did his Residency at St Joes so happened to know the famous Dr Michael Hibner who treats Advanced Pelvic Pain. During one of my primary care visits Dr Roscetti said to me I believe you suffered "Cauda Equina Syndrome and it may have damaged your Pudendal Nerve".  He was right on!  It sure as hell did.   And I thank God for him and his expertise every single day.  Without that knowledge I would not have had some of the treatments and symptom relief I have had thus far from Dr Michael Hibner at St Joes.    I saw Dr Hibner early Spring of 2014.  He ordered Pelvic Floor Therapy and the use of a topical cream for the nerve immediately.  I won't go into detail about therapy, but my internal muscles inside the pelvic floor are stuck in a kegal (charlie horse) and yes, men can get it too.   I went twice a week for 8 weeks while working full-time (with the unsupportive supervisor).  I purchased a donut cushion to sit on while driving.  Driving can make Pudendal Neuralgia worse, as you are sitting on that pudendal nerve.   My symptoms resolved after completing therapy.  I was so ecstatic.   So thankful to the Physicians that participated in my care.  I didn't realize it would return again one day. Remember, driving is one thing that can lead to Pudendal Neuralgia.  I was now driving 3-4 hours per day.  

Comments

Post a Comment

Popular posts from this blog

Lean on Me

I have very much appreciated everyone in my life.  Words that constantly ring in my ears are "call if you need anything".  Those are such precious words to me.  The song Lean on Me plays over and over in my head some days.  I often hear it and become tearful.  Why?  I will tell you why... When you become chronically ill, isolation just happens, you become more vulnerable for abuse, and depression, and you grieve.  Leaning on friends during this time is so important. But, where are they?  They go on with their lives, that's where they go. Most do not understand what it's like to be chronically ill.  If you try to educate them, lets say post about it on facebook, then you often get called out for "trying to get attention".  If you post about how you are feeling, you get called out for "complaining".  It's a lost battle.  People expect you to be able to do the same things you once could do.  There are very few people who understand it is difficul
Read more

Who's responsibility?

My goal is to write, and not just for me, but for others, who need to be educated about these rare diseases, because believe me, they are becoming more prevalent.  With more and more Failed Back Surgery Syndromes and the NUMBER ONE cause of Arachnoiditis is Epidural Steroid Injections into the spine. Epidurals are not FDA approved for injections into the spine. It is on the label that it can cause neurological injury (Arachnoiditis). Doctors (especially pain doctors know this) and should not be offering such injections.  You, as the patient have every right to refuse these injections.  I, only want to educate you. That is my goal, if I can prevent any one of you from getting this condition, then I have done my duty, I have accomplished my goal.  You do not want this.  I did not get Arachnoiditis from an Epidural, mine was from spinal trauma, but Epidurals are the number one cause and please think twice before getting one.  Here is the link to the FDA website.  FDA warns of Epidurals
Read more

Friendships

Throughout the past few years I have been blessed with some very helpful, compassionate, understanding friends.  I have also had to bear the hurt, rejection, and sometimes betrayal of those once closest to me.  About a year into my ordeal, I would come to understand just how chronic illness would impact friendships and become peaceful a year or so later with learning to be alone.  I was always a social person, the first to create an extravagant event at my home, invite 60-80 guests and make "special treats" homemade.  This, I could no longer do.  I had a history of being "fun", "life of the party", I used to enjoy the occasional bottle or two of wine, and the crazy events that arose from them.  Lots of memories had been made over the years within my group of friends.  My health no longer allowed me to be this person, the pain put a stop to the fun, no doubt.  One thing I could still do was give.  When I was invited places, I still offered to bring homemad
Read more