Long time no talk-update
I haven’t written in 9 months... why? I do not know. Combination of many things: Depression, and just the fact that there is no end to this. It’s seems so negative to write all the time. Although I know writing is therapeutic. I see no cure in the future of Arachnoiditis, and once you have had Cauda Equina Syndrome, they can not go back and fix it. There are stages of Arachnoiditis, mine has of course has Progressed to the worst which is Adhesive Arachnoiditis. All of the nerve roots are clumped together in the thecal sac. Unsure if it is impeding the cerebral spinal fluid flow yet, but could be. Let’s not forget the Pudendal Nerve Injury. That also can’t be “cured”. I will be continuing with Botox into the pelvic floor muscles as soon as Dr Hibner gets established at his new practice. He will also order more pelvic floor therapy which I have done for 6 years. Without it, I seem to go backward. I do use suppositories compounded with Baclofen/Valium/Ketamine fo