A New Pair of Pants

As the time goes on, I continue to have procedures, try new medications, and participate in pelvic floor therapy (which has now totaled several years)  I have not made much progress, the insurance is not wanting to approve any more sessions.  I do participate in Myofascial release which is a type of massage technique used to break up the scar tissue in the fascia. This is in hopes of helping my Cerebral Spinal Fluid to continue to flow without obstruction throughout my spine and to my brain. I have monthly membership at a local massage place.  Not many masseuse are trained in this technique, I am very lucky I have found one close to my home.  I continue to be wheelchair bound when going outside of the home shopping etc.  The spasms from the Pudendal nerve and injury to my spine is much to great to withstand walking/standing for longer than just a couple minutes.  My Dr has ordered an electric scooter for me, although I have not yet received it.  I wa...

My worst fear happened.  I was leaving the GI Dr and taking my hubby a Starbucks. I was stopped at an intersection when I was rear ended and then hit the truck in front of me.  The impact was slight, but unfortunately being sandwiched between two cars was what caused the most damage. I was actually on the phone with my hubby at the time of the accident (bluetooth of course), he heard the collision) he immediately left his work and came to the scene. He arrived before EMS.  I instantly felt pain in my neck, spine, and legs.  The car that hit me stuck around, the truck I hit left the scene.  I had no idea what my car looked like from the damage and did not want to know.  The only thing going through my mind at the time is wondering if the hardware from the surgery I had several months prior was ok.  Normal healing time for a fusion is one year.  It had not been a year and I was mainly concerned about my spine and the history of my spinal cord injury...

Here is a post of one of my Pet Peeves, something I prefer others do not do to me or anyone with a Chronic Illness for that matter.  It is not only rude, but completely indicative of "you do not understand one bit of what I go through" or you would not do it.   I have friends that say "I will call/visit you on such and such day"  I arrange my schedule, look forward too, shower (with all the energy I have),  and get ready for their call/visit.  I wait, I wait a little longer, I fight back the urge to nap, my body gets very tired, but I tell myself I have to stay awake because "so and so" is visiting today.  I throw off my routine/schedule for someone that never calls or shows up.  Never has the decency to even text to say they aren't coming.  Do not do this to me (or anyone that is chronically ill).  It is beyond rude, it throws off my routine.  I could have napped, and not fought my body on the horrible fatigue I felt waiting for yo...

What a difference!  So each year Phil takes an Annual Guys Fishing trip to Lake Powell in May.  I usually go to Michigan to stay with family during this time.  Last year my bio mom came here to help me because I had my tonsils out.  This year there was a possible invite on the table for me to go part of the week on the fishing trip. Well, let me describe briefly how that went.  The friend he goes with and his girlfriend met us for dinner to discuss the possibility. The conversation was initiated by the girlfriend who I have only met a couple times.. "The boat ride out there is going to be really rough on you, the houseboat seats are old and uncomfortable, you have to climb a ladder to the roof to sleep on an air mattress every night".  At that point Phil's friend jumped in as said "it's not that we don't want you to go, it's that we care about your safety. He gave me some scenarios of what may happen if the wind was high and the bass boat was rocky on the...

I decided to travel recently, which, since my injury, has been very minimal.  The first trip was a short roadtrip with Phil, Jordan, and his girlfriend (Hannah), to Vegas for a family Reunion.  We were meeting up with my family who I had not seen for up to seven years.  My sister, Wendy and her husband from NY,  as well as his side of the family would meet us out there to visit with my niece. She started teaching 8th Grade Orchestra last year in Vegas.  My nephew who is now living in Steamboat Springs, CO as a Ski Instructor would also be flying in.  Jordan has not seen his cousins since prior to going into the Army when his Grandmother passed away in 2011 and we had the Celebration of Life and the family all flew in to spend the time together at our home.  My sister Dawne from Phoenix was also going with us.We all rented a house and discussed what the weekend would look like as we would only be spending Fri-Sun with them.  The rest of the family ...

I guess when you don't feel so well, you just don't feel like doing much.  That pretty much sums up my day.  I just don"t even move, because when I do, it produces pain. So I find sitting in the recliner, motionless is often the way to be.  I am trying to find activities to keep my brain active because I know this is no way to live day in/out.  I have got to find things to do from a reclining/sitting position.  I have gone over the fact that many friends have drifted, which I have come to terms with.  There are some friends that have not, and they are incredibly loyal, checking in daily. Sometimes hourly conversations.  I would say on an average week I have a visitor which sure breaks up the monotony of the day.  For the most part, I do not leave the house accept on the days I have an appointment.  Phil usually takes the car which is just fine by me.  I often relax, in comfies, I struggle to bathe, but I get it done..eventually.  Ba...

Throughout the years as a Social Worker I have assumed the role as a Case Manager and helped hundreds of my patients/clients apply and be accepted for Social Security Disability.  Back in the early 2000's it started out as a paper application, 15 or more pages we would do together (I would do for them, as many were too sick to do themselves). As years progressed, it has now become an online version of the application.  I never wanted to have to apply for Social Security Disability, let me just get that out there to clarify.  The way it works is this... I am on a Long Term Disability Policy through my previous employer for two years.  They require me to apply for Social Security.  If I am denied, they have lawyers that help the appeal process.  If I am approved, Social Security becomes the first payor and Long Term Disability picks up the remainder of what SSD doesn't pay for the rest of the two year term of the LTD contract.  So, upon this agreement Lo...